The universe is a funny thing. Lately, I’ve been getting little nudges to write about chronic pain in children. It’s been a while since I've written about Pea’s Juvenile Idiopathic Arthritis. I’ve been reluctant to write much about it because…I think she is finally in remission. There. I said it. I’ve been afraid to say it because I did not want the Universe to … [Read more...]
My bulletproof baby
I'm bone tired this morning. I had a difficult time falling asleep and was up well past midnight. A couple hours later, Pea woke me up. She was wide awake, in what I have come to think of, as her pain position, knees up on a pillow, legs restlessly writhing. Calmly staring at me. Normally, our night time adventures start with her screaming incoherently about something … [Read more...]
Operation: Perspective
November 2013 hasn't really been an easy month for us. To give you an idea, my miscarriage in October was just the pebble that preceded the avalanche. It has gotten worse since then. We have been in juvenile arthritis hell. A good friend told me that the miscarriage was probably for the best because there has been so much on my plate since then that it would have been too … [Read more...]